Participant Information Sheet

Quality Access to Primary Care: Perspectives of Disabled New Zealanders.

What works best  in primary care?  Perspectives of Disabled New Zealanders

YOU ARE INVITED to take part in a focus group about your experiences using primary healthcare services provided by a General Practitioner and her/his practice staff.

This research project is a partnership between the Independent Living Service Auckland Inc (ILS) and the University of Auckland.  The project is being led by Dr Laura Wilkinson-Meyers from the University of Auckland, who is working alongside disabled people as advisors and co-researchers to ensure partnership and collaboration in every aspect of the project.     

The project is being funded by the University of Auckland’s Faculty Research Development Fund for New Staff and will run for a period of 1 year.
This research seeks to explore how disabled New Zealanders use primary health care services and to understand their experiences when finding and accessing high quality care that meets their needs.

This research will explore what is working well and what could be improved to make primary health care more accessible to disabled New Zealanders. 

While the research findings will be shared with health professionals, primary health care organisations and disabled people, it does not mean that entitlement to health services or the way care is provided will change.
We are looking for around 64 disabled people who have different impairment types, circumstances and experiences to take part in one of 8 focus groups. 
What to expect?

Focus groups will be facilitated by Dr Laura Wilkinson-Meyers and a co-researcher (either Ronelle Baker or Wendy Chiang).  Each focus group will be held at an accessible venue and will take around 3 hours.  There will be a mihi/welcome, introduction to the project, time for discussion and a tea break.  
All participants in the focus groups will receive a $50 voucher in appreciation of their time.  We will also pay for your travel costs to and from the venue where the focus group will be held. You can also choose to bring a support person to the focus group.
Focus group discussions will be audio recorded (voices only) and this recording will be typed up so the researchers can review what was said.  Participants will not be asked about their personal medical history or health care conditions. We are interested in learning about your experience using primary care services. 

Participating is your choice. Take the time to talk to your family/whanau about participating and contact Tony (details below) if you have any questions. If you do agree to take part and then change your mind, you are free to withdraw from the study without giving a reason any time before or during the focus group. 
Please turn over.
Your participation or decision not to participate will not have any effect on your relationship with the ILS or the services the ILS provides to you.

If you agree to come to a focus group and once there, become unsure about whether you want to join in, please note that the audio recorder cannot be stopped during the focus group once it has started.  But, you do have the option of leaving the focus group in between discussions or not answering a question asked during the focus group if you do not want to.  
We are also unable to take out the things you have said from the audio recording, as removing parts of a conversation would affect the understanding of the topic. 
Are you interested in taking part in a focus group?  If so, please contact:
Tony Howe, Information Consultant
Independent Living Service Inc.
Telephone: (09) 625 0322

Confidentiality cannot be guaranteed in a focus group but all those who take part will be requested not to share anything discussed in the focus group. 
After the focus group, only members of the research team will listen to the recordings and type up what was said. We will remove all names and other information that could identify you or anyone else in any transcriptions (typed up recordings), research reports or publications about the research. 
All information related to this research will be stored on password protected computer databases, or in locked cabinets at the University of Auckland. Consent forms will be stored separately from other material. The only people with access to this material will be the research team. All material, including audio-recordings, will be destroyed after six years. 

If you have any queries or concerns regarding your rights as a participant in this study you may wish to contact a Health and Disability Advocate:
Nationwide Health & Disability Consumer Advocacy Service
Free Phone: 0800 555 050
For any queries regarding ethical concerns you may contact the Chair, The University of Auckland Human Participants Ethics Committee, The University of Auckland, Office of the Vice Chancellor, Private Bag 92019, Auckland 1142. Telephone 09 373.7599 extn 83711.

Approved by the University of Auckland Human Participants Ethics Committee on 25 February 2014 for 3 years, Reference Number 9450.


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Dr Laura Wilkinson-Meyers
University of Auckland 
Health Systems
Private Bag 92019 
Auckland Mail Centre
Auckland 1142
T. 09 373 7599 x89143 
F. 09 373 7503
14 Erson Avenue
PO Box 24 042
Royal Oak, Auckland
T. (09) 625 0322 or
0800 625 100

F. (09) 624 1633

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