ILS March Newsletter 2016

In this March Newsletter from the Independent Living Service you'll find information about:

  1. ILS Asian Service celebrating Chinese New Year
  2. We are looking for your feedback
  3. New to ILS the Uccello Kettle
  4. Conference Facility Hire
  5. Age Concern Counties Manukau Counsellor Service
  6. Do you, or does someone you know, have a genetic muscle disorder?
  7. Patient Experience Week 2016 with ADHB, CMDHB & Waitemata DHB
  8. Towards an Age-Friendly Auckland: The missing links
  9. End of Life Training for Health Care Assistants
  10. Kids Connect Camp is coming
  11. 50 Years of Joint Action
  12. Come along to the first Sector Hui
  13. Indian Families with Children of Special Needs support group meeting
  14. Supported Decision Making
  15. AUSTSWIM Aotearoa presents AKWA MATE have a go day
  16. Parting Thought

1. ILS Asian Service celebrating Chinese New Year

Felix Lin, our Asian Information Consultant, has been out in the community celebrating the Chinese New Year at this Chinese & Korean festival in Northcote
If you would like to book an Asian Service presentation please contact Felix on 625 0312 or email

请联系小林如果您或您的团队想预订我们亚洲服务演讲,电话号码 6250312 或邮件

2. We are looking for your feedback

We are constantly looking to improve the products and services we provide and would like to invite you to give us some feedback.  

Please click on the feedback link to complete.

As a thank you we'll email you a voucher for a free Thermotex Personal Therapy System to redeem in store.

*Offer ends 31 March 2016 or while stocks last. Only 1 Thermotex Personal Therapy System per email address. The Thermotex Personal Therapy System may differ from the picture.

3. New to ILS the Uccello Kettle

New to ILS the Uccello Kettle - a stylish looking kettle with an ergonomic handle (ideal for those with arthritis), an easy to read water level indicator and non-slip stable base. Come and see for yourself in store or buy online.

4. Conference Facility Hire

Are you looking for accessible conference facilities in central Auckland, close to the Auckland Airport and motorway systems?  

Based in Royal Oak, Auckland, ILS conference facilities are designed to make your meeting a success. All ILS conference facilities are fully accessible for all mobility and auditory requirements. Competitive rates offered. To find our more email

5. Age Concern Counties Manukau Councellor Service

Change Day is about you pledging to improve the healthcare experience for every Kiwi. It's about individuals like you taking action albeit small steps that can collectively bring about big changes.

Make a difference now. Pledge to make a change.

For more information see

6. Do you, or does someone you know, have a genetic muscle disorder?

If so, AUT University would like to hear your story. AUT University is looking for participants to take part in a muscular dystrophy prevalence study.  Genetic muscle disorders included in the study are Duchenne muscular dystrophy, Becker muscular dystrophy, manifesting carriers of muscular dystrophy, congenital muscular dystrophy and myopathies, Emery-Dreifuss muscular dystrophy, Facioscapulohumeral muscular dystrophy, Limb girdle muscular dystrophy, myotonic dystrophy, Oculopharyngeal muscular dystrophy, Distal muscular dystrophy, Myotonia congenita, Paramyatonia congenita, Central core disease, Pompe's disease, Nemaline myopathy, Myotubular myopathy, GNE myopathy, Periodic paralysis and HyperCKemia.

Please contacte the MD-Prev Research Team for more information on: 

Phone: 0800 MDPREV (637738)
Text: 021 245 8597

7. Patient Experience Week 2016 with ADHB, CMDHB and Waitemata DHB

Patient experience week is about putting the patient at the heart of planning, improving and delivering health services. This is an exciting opportunity for new and more experiences consumer representatives to share their experiences , gain practical advice and tips on working with the DHBs and advise what the DHBs could be doing better.

Topics will include:

  • Understanding the health and disability system in NZ
  • Building confidence and making sure you are heard
  • Improving communication with and between consumer representatives
  • What it the future of consumer engagement andhow do we get there?

We want and need input from all of Auckland's diverse communities to improve health and care services.

The details are:

When: Friday 11 March from 10am - 12pm (including lunch)
Where: Wesley Community Centre, 740 Sandringham Road Extn, Mt Roskill

A NZ Sign Language interpreter will be provided upon request. Please RSVP by Friday 4 March as there are limited spaces available. For more information or to RSVP to the forum contact:

Tony O'Connor, ADHB,, 021 516 535
Carol Hayward, WDHB,, 09 486 8920 ext 2643
Renee Greaves, CMDHB,, 021 661 407

8. Towards an Age-friendly Auckland: The missing links

Auckland District Council of Social Services (ADCOSS) invite you to their free forum on "Towards an Age-friendly Auckland: The missing links".  Come along to participate and name what needs improving in your local area, then identify some priority actions to help our city become more age-friendly. (This World Health Organisation report may offer some ideas).

The details are:

When: Thursday 17 March from 9.30am - 3.30pm
Where: Western Springs Hall, 956 Great North Road, Western Springs, Auckland

For catering purposes please register your interest via email to by 13th March.

9. End of Life Training for Health Care Assistants

  • Learn to identify key concepts in end of life care.
  • Gain comprehensive knowledge of the role of the Health Care Assistant in providing end of live care
  • Further develop your end of life care management skills; mouth care, skin care, last days of life and other aspects
  • Feel confident to talk with residents / clients / and their family / whanau
  • Understand your feelings around the loss of a resident or client.

The details are: 

When: Friday 8 March from 8.30am - 4.30pm
Where: Living and Learning Centre, 206 Swanson Road, Henderson
Cost: $55

Morning and afternoon tea provided. Please register by emailing or phoning 09 834 9754.  This is a Hospice New Zealand endorsed programme, certificates will be issues to those who attend.


10. Kids Connect Camp is coming!

This is a fun-filled weekend where kids aged 9-16 with physical and mild intellectual disabilities, can have a blast, make new friends and enjoy a weekend especially designed with them in mind.

The details of the next camp are: 

When: Friday 18 March - Sunday 20 March
Where: Blockhouse Bay, Auckland
Cost: $130 approximately (subject to change)

For a registration form or for more information, please email or phone 09 630 5271 or visit

11. Come along to the first Sector Hui

The details are: 

When: Wednesday 9 March from 1.30pm - 3.30pm
Where: Lynfield Room, Fickling Conference Centre, 646 Mt Albert Road, Three Kings, Auckland

Topics for discussion are:

  1.  Report back on Auckland Council links
  2. Beach Haven Whanau Community Trust – who they are and what they do - Carlos Rogers and team
  3. Community – Campus Connections – a proposal for research seminars in Auckland – Bill Ryan – Victoria University School of Government
  4. Local Body Elections – how could the community sector engage?
  5. National issues from Hui E! and others – Ethnic Summit April 30, National Umbrellas April 6, Inc Socs Act Roadshow, Sustainable Development Goals
  6. Round Robin – news, issues and ideas – your input

For more information please contace Peter Glensor on or visit

13. Indian Families with Children of special needs support group meeting

Disability Connect is delighted to announce the first 2016 Indian Families with Children of Special Needs Support Group meeting in February. Parents are concerned for the future and wellbeing of their children as they get older. The topic of this meeting will be on legal issues relevant to people with a disability. Topics covered will relate to the Protection of Personal and Property Rights Act and include Welfare Guardianship, Enduring Powers of Attorney, Property Management, Wills and Trusts (important for preserving assets for a family member with a disability). We welcome all Indian families to attend.

The details are:

Date: Thursday 18 February from 5pm till 8pm
Where: Whanau Room, Mt Richmond School, 30 Albion Road, Otahuhu, Auckland

Click here for more information

14. Supported Decision Making

Auckland Disability Law in partnership with the Office of Disability Issues and the Ministry of Social Development's Think Differently Fund is hosting a National Conversation hui about supported decision making (SDM) in April.

SDM makes sure disabled people can make choices about their own lives. Effective SDM helps to ensure disabled people have the same rights as everyone else. We invite you to be part of this important event.

Who is the Conversation hui for

  • Disabled people, people living with dementia and their supporters and family/whanau
  • DPOs, disability service providers, community organisations and their straff
  • Legal and health professionals
  • Anyone who has an interest in SDM

What will be discussed:
  • What SDM is and why it's important
  • SDM as a human right and Article 12 of United Nations Convention on the Rights of Persons with Disabilities (UNCRPD)
  • What is happening in NZ about SDM
  • Legal processes around SDM
  • People's right to make their own decisions, and what it takes to make SDM work for people
  • Practical publicatins and resources available to help SDM

The details are: 

When: Wednesday 20 April and Thursday 21 April 2016
Where: Waipuna Hotel, Mt Wellington, Auckland

Registrations open Friday 4th March.

16. AUSTSWIM Aotearoa presents AKWA MATE have a go day

An innovative, interactive and affordable aquatic program for people who present with a medical condition and/or disability and/or mobility condition aged 10 to 25 years old to experience enjoyable and achievable physical activity

  • Meet others in a friendly environment
  • Learn new water safety skills
  • Conducted by a trained and licensed AUSTSWIM Instructor
  • Improve fitness and water confidence

The details are: 

When: Saturday 12 March, 2.30pm - 3.15pm
Where: YMCA, Onehunga Pool
Cost: Free

17. Parting Thought

"Keep your face always toward the sunshine - and the shadows will fall behind you."  Walt Whitman
Book seat
Multi grip opener
Contact Us

0800 625 100

Royal Oak Store

14 Erson Ave, PO Box 24 042,

Royal Oak, Auckland

Ph: 09 625 0322

Botany Store

308 Te Irirangi Drive,

Botany South, Auckland

Ph: 09 281 5027

Browns Bay

13-15 Bute Road,

Browns Bay, Auckland

Ph: 09 550 3387

All Stores Open:

Monday - Friday: 9am - 5pm

Saturday: 9am - 4pm